Teenager wants to travel as many worlds as possible before completely lost his eyesight.
The 17 -year -old Tilly Hayward has been diagnosed with rare genetic eye diseases and will eventually be blind.
Stargardt’s disease is a genetically genetic state. Influencing one in 10,000 people occurs when fat substances accumulate in macula, part of the retina required for central vision.
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Most people in the state keep the surrounding vision, so they do not completely lose their vision. However, in November last year, Peter Rose Hayward learned that her vision worsened and blinded.
“The news is forced to see that life is short,” she said.
Teenager’s Tilly Hayward is on display with his mother, Nicola Reynolds. Teens want to see as many worlds as possible before losing their vision. (SWNS)
Hayward said she didn’t know how much time she had to lose her vision, and she started raising her money to help her see the world.
Her Wish List: Walt Dizney World Resort and Dubai beach in Orlando, Florida.
Hayward said, “What I was told to be blind in preparation for the worst, gave me the motivation to see as many worlds as possible. From the age of 4 or 5, I was crazy about the beach and plane. “
She said she always wanted to be a flight attendant.
The teens do not know the time she loses her vision.
Hayword was born with Starguard’s disease, and both parents carry genes.
Teenager said that people had a problem with her visibility since the age of four, but said that their glasses recommended glasses.
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“When I was seven years old,” she said, “I started hitting things and sitting near the TV, but I was able to read a regular font -size book.”
She said that she still remembered that her mathematical teaching assistant said she had been told to plot the graph coordinates.
Teenager’s Tilly Hayward Wish list (not a picture) is Dubai. “I think it’s a very cool place where the beach and the city are all one,” she said. (ISTOCK)
She said she brought her back to an ophthalmologist. At that time, the family reported that the child was told that there was an “action problem”.
They were finally introduced to two different hospitals.
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Hayward said, “I said that I had endured a lot of tests to understand what the doctor was doing. I was diagnosed with Starguard’s disease when I was 9 years old. I have a central eyesight. No, the visuals around me are like a spider. “
She has a “some vision”, but said, “it’s clear or unusual.”
“If you can’t see people or waves on the beach, I will listen to it.”
STARGARDT disease usually affects only the center of vision, but the scan taken in November 2024 showed that it was spreading to her surrounding vision. 。
She reported that she learned to read Braille, studied for the exam, and accepted her to lose her eyesight.
The Heward shown here wants to see as many worlds as possible before blind. “I realized that I could still achieve something surprising,” she said. (SWNS)
Hayward said, “Until I was 15 years old, I never acknowledged that I was (a) blind (as a person). I was very embarrassed. I can still achieve something surprising. Masu.”
She believed her mother as the “biggest champion” as usual.
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“I went to Spain last year, but it was surprising. I felt very happy, but it was really difficult.
“It’s incredible just to listen to music.”
Hayward said, “I’m taking the most of what I can do. If I can’t see people or waves on the beach, I’m listening to it.”
She revealed that she had experienced “really scary depression” in her situation and had fought anorexia for five years.
But today, “I realized that there was no need to control or hide my feelings.”
The teenager said she was a “big fan of Disney” and always wanted to see Cinderella Castle at Disney World. (2024 geek)
She set up a GOFUNDME page to support the world trip. Earlier this week, she has already raised £ 1,490 (nearly $ 1,850 for US $ 2,500) of £ 2k.
She added, “My biggest dream is to go to Florida because I was a small girl,” she said, “I’m a huge Disney fan,” she always wanted to see Cinderella Castle.
“I accepted that it was not a fact, but I can’t believe it just listening to music.”
She also said, “I also want to go to Dubai. I think the beach and the city are all cool places.”
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The teen are written on the page of her fundraising activities as follows. The evening sunset along the beach front. “
Hayward says, if someone has been diagnosed or has experienced loss of eyesight, she says, “It was the end of the world and there might be no future or hope. You are.” Ta.
“I was a small girl, so my biggest dream is to go to Florida,” said Heward, depicted in the above sunglasses. (SWNS)
She continued, “You can learn to live and adapt with it. If I haven’t experienced my eyesight loss, I’m not the one right now.”
Her supporters wrote on Facebook, “Don’t give up God’s blessing and hope.”
Fox News Digital contacted the Hayward family for comments.
For other lifestyle articles, see Foxnews.com/LifeStyle.
NATIONAL EYE INSTITUTE pointed out that in the case of Stargardt, “(v) ISION loss usually begins in childhood, but people with Stargardt sickness do not begin to lose their vision until they grow up.”
According to the same source, there is no treatment for rare genetic diseases. “But visual acuity rehabilitation helps people to maximize the remaining eyesight.”
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The Cleveland Clinic reports that the Stargardt disease has other names such as Stargardt macular degeneration, Fundus Flavimaculatus, and ABCA4 retinopathy. Gene affects the way the body uses vitamin A.
